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November 2002
CanChild
Centre for Childhood Disability Research
McMaster University, Hamilton, Canada
What's New
Welcome to the first issue of CanChild's Community Connection, our quarterly e-newsletter. We are pleased to send you informative and up-to-date research on childhood disabilities. If you would like to receive future issues please subscribe by clicking on CanChild Home below and click on Newsletter, or go to our website, www.fhs.mcmaster.ca/canchild and click on Newsletter. If you have difficulty viewing this newsletter, please send us an e-mail.
Our Current Research Projects
We highlight a few of our current projects in this issue. Each one is linked to more details.
ASQME Study Progress Report
Thirty-four therapists across Ontario have been hired to conduct in-home interviews and physical assessments for the Adolescent Study of Quality of Life, Mobility and Exercise (ASQME Study, pronounced "ASK ME"). Study Assessors have participated in training workshops in September and October of this year. Children who participated in the Ontario Motor Growth Study (OMG) who are now age 11 or older will be invited to participate. Over the next few months we will start contacting these adolescents and their families to tell them more about this new study.
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We will assess patterns of activity, forms of mobility and factors associated with changes of function specific to adolescents with cerebral palsy (CP).
This five-year study is funded by the Canadian Institutes of Health Research.
Children with Traumatic Brain Injury
Children with a mild to moderate traumatic brain injury often have difficulty following instructions in school. In the Cognitive Intervention for Children with Traumatic Brain Injury Study, we will try to help children develop strategies to cope with everyday activities. Recently the children began a 10-week intervention. The Ontario Neurotrauma Foundation funds this study.
Understanding Family Priorities
The Understanding the Values, Priorities, and World Views of Families Raising Children with Chronic Developmental Conditions study funded by the Canadian Institutes of Health Research began recently. Up to 24 families of children with either Down syndrome or autism from across Ontario will be interviewed as part of this three-year study. Researchers are hoping the results will benefit families and service providers.
Participation
Over 400 children with disabilities and their families from across Ontario will be interviewed for the third (and final) phase of data collection for the Participate study beginning January, 2003. (continued)
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