Current State of Stem Cell Treatments for Cerebral Palsy: A Guide for Patients, Families, and Service Providers
This resource describes stem cells in the context of cerebral palsy, and describes the current state of stem cell treatments, including an update on clinical trials and stem cell tourism.
A video inspired by the parent members of the On Track study team.
A video inspired by the parent members of the On Track study team and funded by PCORI.
Helpful tip sheets written by parents who have children with Cerebral Palsy for parents.
Jan Willem Gorter discusses teens in transition in this video produced by the Cerebral Palsy Foundation. What do you do to encourage your child's independence?
Darcy Fehlings explains how CP can effect the brain depending on the type and location of the brain injury.
Pain in children and young people with cerebral palsy is under-recognized and can have a serious impact on quality of life. The webinar is appropriate for anyone who wants to learn more about pain in children and young people with cerebral palsy.
What is the evidence of the effectiveness of strengthening for children with cerebral palsy aged 4-18 years?
Muscle weakness is commonly seen in children with cerebral palsy (CP) and can impact on their activities and participation in daily life situations.
This project was designed to investigate the validity, reliability and responsiveness of the Gross Motor Performance Measure (GMPM).
This report focuses on what parents told us about the health conditions their children have, and how these conditions affected their daily lives. When we say “health”, we mean all the different functions of the whole body.
In Brief - By talking with parents of children with CP and exploring this feeling further, the aim was to identify areas in which professionals can improve on their practice, as well as to collect information to help parents of newly-diagnosed children with CP.
CP-NET is excited to present “Growing up with CP: Mental Health & Well-being,” a webinar initiated and led by young adults for young adults. Highlighting both lived experience and recent research from the CP-NET MyStory project, this webinar will explore the intersection of mental health and CP, and discuss how we can better support young people in developing positive outcomes in mental health and well-being.
Based on "The 'F-words' in Childhood Disability: I swear this is how we should think!" (© CanChild 2012) Created by Instituto Nossa Casa (Brazil) . English version produced by CP-NET with support from the Ontario Brain Institute.
Disability is a culture of identity to which parents aren’t given a handbook, and families of children with disabilities often experience significant stress and feelings of isolation. Social media can be an excellent tool for connecting with other families to share lived experience, support, resources and mentorship, while the accessibility of social media can bridge the barriers of geographic distance and rare diagnoses.
GMFM scores of a sample of over 650 Ontario children with cerebral palsy with varying GMFCS levels have been used to create five Motor Growth Curves.
Summary prepared for participants in a 2012 CP-NET Clinical Constraint Therapy study.
Use of the Gross Motor Function Classification System to Optimize Rehabilitation Management of Children with Cerebral Palsy
The GMFCS is a standardized system to classify gross motor function of children with CP aged 12 months to 12 years based on observation of a child's self-initiated movement and need for assistive technology and/or wheeled mobility.
A conceptual model is a diagram that shows different factors that we think may have an effect on a variety of outcomes, such as motor abilities, self-care abilities, and participation in play.
The Quality of Upper Extremity Skills Test is an outcome measure designed to evaluate movement patterns and hand function in children with cerebral palsy.
The Focus on Function Study will compare two treatment approaches ("child-focused" and "context-focused") that are currently being used for children with cerebral palsy and other developmental and motor delays.
An Update On The Use Of Virtual Reality Technology To Improve Movement In Children With Physical Impairments
The use of virtual reality technology as a rehabilitation intervention to improve or remediate children's movement skills is being explored in clinical practice and research.
The Impact of Environmental Setting on the Mobility of Children with Cerebral Palsy: Research Findings and Clinical Implications
Gross motor function of children with CP is highly variable. Children who are able to walk vary in their speed, endurance, and need for assistive devices.
This two-year study described quality of life and level of participation of children with cerebral palsy (CP).
The literature helps in understanding the things that affect children with CP in moving from preschool to primary school and from school to post-secondary options.
This cross-sectional study continued a multi-year program of research conducted to understand the relation between caregiving offered to parents of children with neuro-developmental disabilities and parents' mental health
‘Hemiplegia’, ‘hemiparesis’, or ‘unilateral’ CP affects the movement and muscle tone on one side of the body, although often the other side of the body may be affected to a lesser extent.2 It is the most common form of CP.
The Quality FM is an observational instrument to be used in the evaluation of the quality of movement in children with cerebral palsy.
Determining Physical Activity Levels and Cardiovascular Health in Adults with Cerebral Palsy (Stay-FIT 20-40 years study)
In the Stay-FIT pilot study, it was determined that the physical activity level of adolescents with CP (mean age 13.5 years) was lower than that of their healthy peers. However, the vessel health was not statistically different.
Sleep issues are very common throughout infancy, childhood, and pre-adolescence. Studies estimate that sleep disturbances vary from 5% to 40% among all children.
Darcy Fehlings addresses the biggest CP myth of all in this video produced by the Cerebral Palsy Foundation.
Dynamic Systems Theory: A Framework for Exploring Readiness to Change in Children with Cerebral Palsy
Dynamic Systems Theory (DST) is a theory of motor development that can be applied to the management of children with Cerebral Palsy.
Scientists have identified many genes involved in neurodevelopmental and neuromuscular disorders, such as autism and muscular dystrophy. This study’s goal was to investigate whether changes in genes could also have effects that result in cerebral palsy (CP).
This report focuses on what parents told us about the recreation and rehabilitation services their children received. We collected information about various aspects of these services at the 2nd session, using a parent questionnaire developed by the research team.
Exergames are a promising way to allow children with CP to participate in physical activity, permitting adaptations of exercise equipment and video games. In this In Brief, researchers tried to answer the question "Can action based exergames that are fun to play over the long term be designed for children with CP?"
The purpose of this study is to evaluate the effectiveness of physical therapists, acting as Knowledge Brokers (KBs) within their own clinical facility to facilitate the clinical use of evidence-based measures of gross motor function for children with cerebral palsy.
The purpose of the Move & PLAY study was to gain a better understanding of the child, family, and service delivery factors that support the development of movement abilities and participation in self-care, recreation, and play of preschool children with cerebral palsy (CP).
Metformin is an promising drug that may be effective in the treatment of people with CP following brain injury.
Bringing the 'F-Words' to Life: How are families and service providers using the 'F-words' in practice?
A CP-NET webinar highlighting 'F-word' in Childhood Disability resources and strategies for implementing the concept at home and in clinical practice.
There are 2 summaries in this series describing the results of the main goal of the Move & PLAY study: to determine which child, family, and service factors influence children’s motor, self-care, and play abilities.
Neurodevelopmental therapy and casting: A comparison of intensive neurodevelopmental therapy plus casting
The purpose of this study was to evaluate the combined effect of intensive neurodevelopmental therapy (NDT) and casting in children 18 months to 4 years of age who have cerebral palsy.
Constraint therapy aims to improve the hand and arm use of children with hemiplegia. It involves physical constraint of the uninvolved or less affected arm to increase the use of the more involved or affected arm.
Although it has been suggested that adolescents with cerebral palsy (CP) may experience loss of function following puberty, little research evidence exists to support this claim.
Stay-FIT Pilot Study: Accelerometry is a good way to measure daily physical activity in adolescents with Cerebral Palsy.
The purpose of this study (a Stay-FIT pilot study) was to test the ability of a device known as an accelerometer to measure physical activity in adolescents with CP.
Recent headlines about the role of genetics in cerebral palsy may have you wondering how studies in genomics might affect your day-to-day life, clinical practice or research. Topics covered by the webinar include an overview of the human genome, how it can vary from person to person, what this has to do with CP & where this might lead.
This Keeping Current is one of a series of reports that discuss the effectiveness of rehabilitation interventions for children and youth with brain injury.
This summary is written to help families of children with Cerebral Palsy to understand the findings of a research study “Focus on function: a cluster, randomized controlled trial comparing child-versus contextfocused intervention for young children with cerebral palsy”.
How Does Clinical Research Work? A two-part Primer. Part 2: How to Do a Study, and What Should We Measure?
Part 2 focuses on issues in outcome measurement and generalizing findings from one study to the next.
Hyperbaric Oxygen Therapy (HBOT) is a technique that allows 100% oxygen to be delivered to the body's tissues under increased atmospheric pressure. To achieve this, the patient enters a "pressure chamber" that makes it possible to increase the atmospheric pressure to "hyperbaric" levels, i.e., above the earth's atmospheric pressure at sea level.
In this video, Jessica (a community advisor on cerebral palsy research and person with lived experience) and Jan Willem (a clinician researcher studying cerebral palsy) tell us about cerebral palsy, some of the misconceptions that surround it and what we can do to tackle them. Produced by the Ontario Brain Institute for Brain Awareness Week 2017.
Children with cerebral palsy are at increased risk for language disorders. It is estimated that 20% of children diagnosed with cerebral palsy have severe communication impairments.
Cerebral palsy (CP), one of the most common physical disabilities in childhood, is often associated with co-occurring health conditions, which often have a great impact on children and families. As a result, children with CP require a wide variety of health services.
What helps adolescents with cerebral palsy to be physically active? Developing a program to support youth based on focus groups.
In this communication we want to share our study protocol as part of a program to support physical activity for youth with cerebral palsy (CP) using a focus group methodology.
An informational transition guide for teens with Cerebral Palsy (CP) in starting high-school.
The Gross Motor Function Classification System (GMFCS) is a widely used method for classifying the movement ability of children with cerebral palsy.
How Does Clinical Research Work? A Two-part Primer. Part 1: How to Ask a Research Question and Design a Study
Clinical and health services research in childhood disability are essential if we are to move the field forward and have confidence that what we believe we ‘know’ is in fact based on credible studies.
The Ontario Motor Growth Study was a longitudinal study designed to chart the gross motor progress of a randomly selected sample of over 650 Ontario children with cerebral palsy.
Qualitative interviews with 9 parents participating in this study in order to learn from them about their experiences parenting a child with cerebral palsy from early childhood into young adulthood.
The purpose of this Keeping Current is to review the concern that, rather than being integrated, these two streams ("development" and "disability") of thought have traditionally run more or less in parallel.
Might the development of a software system to accompany the Measure of Processes of Care (MPOC) Outcome Measure enhance the use of this tool in clinical practice?
CP-NET is proud to present "Communication Technology for Children with Cerebral Palsy", a webinar highlighting new research and technologies that aim to assess and support a child's ability to communicate.
The Gross Motor Function Measure (GMFM) is a clinical tool designed to evaluate change in gross motor function in children with cerebral palsy.
The Move & PLAY team developed a new, even shorter method of using the GMFM: the GMFM-66 B&C. It uses a “basal and ceiling” approach; child is assessed using items that range between the easiest and most difficult levels of his or her abilities; accurate scores can be obtained using as few as 15 items
Enhancing Fitness, Adaptive Motor Function, and Participation of Children with Cerebral Palsy Classified in Levels IV and V
This report will address adaptive motor function of children with cerebral palsy. Adaptive motor function enables performance of activities in daily life despite limitations in motor control of posture and movement.
Serial casting is an intervention practice that is becoming more commonly used in occupational therapy (OT) practice, in addition to other treatment modalities/protocols for children with cerebral palsy to manage spasticity and related contractures.
The purpose of this pilot study was to evaluate a family-centred functional therapy approach to improving motor function in 18-month to 4-year old children with cerebral palsy.
The Gross Motor Function Classification System (GMFCS) is a classification tool used to describe levels of gross motor functioning of children with cerebral palsy (CP). Because of the tool’s accuracy in classifying children with CP, some researchers have attempted to use the GMFCS to describe functional mobility of people with other conditions. Here we explain why the GMFCS should not be used outside the domain of CP.
The Gross Motor Function Classification System - Expanded & revised (GMFCS - E&R) is a 5 level classification system that describes the gross motor function of children and youth with cerebral palsy.
The CP-NET Today! newsletter will help you keep up-to-date on exciting research developments in the area of Cerebral Palsy (CP) research funded by the Ontario Brain Institute (OBI), as well as news and events of interest to the CP-NET community.
Created in collaboration with children, youth and adults with cerebral palsy and their families, and released in celebration of World CP Day.
These six F-words won’t fill up your swear jar: What do the F-words mean to youth with impairments? (Video)
Young people discuss what the "F-words" in disability mean to them, while celebrating all they CAN do!
This report focuses on what parents told us about their families at the 2nd session (a telephone interview). We asked about many different things, for example: family activities, the supports that families have in caring for their children, and the home environment.
The GMAE-2 is a software package for scoring the Gross Motor Function Measure (GMFM). Like the original, it provides an interval-level measure of gross motor function based on a child's score on the items of the GMFM.
The purpose of this multi-centre randomized control trial was to evaluate the effects of lower-extremity orthoses on the gross motor function and performance of children with spastic CP who are not yet walking independently.
Complementary and alternative medicine (CAM) is the term for medical products and practices that are not part of standard care. This webinar was presented by Dr Peter Rosenbaum on behalf of CP-NET.
Mental and physical health are deeply interconnected. While chronic health conditions such as Cerebral Palsy (CP) can increase the risk of developing anxiety or depression, untreated anxiety or depression can also contribute to poor physical health.
Constraint-Induced Movement Therapy for children with cerebral palsy: Is there an impact on brain activity?
This In Brief discusses Constraint Induced Movement Therapy (CIMT), a therapy approach program aimed to improved the hand and arm use of children with hemiplegia.