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Diane Kay

Parent Researcher

Diane

Biography

Diane is a mother of a twelve-year old boy with cerebral palsy. She lives in England and is actively involved in disability awareness initiatives. Diane became involved with CanChild in 2012 after she read the F-words paper, and has since created the ‘F-words Agreement’ (2013) for her son and written a news article on of the ‘F-Words’ in Holland-Bloorview’s Bloom Magazine. Diane joined the F-words in Childhood Disability Research Team in February 2014. She was involved in the F-words Awareness Video Project (2014) and has co-presented on the F-words at multiple international meetings. Diane has also been involved in development of the Knowledge Hub.  

Highlighted Presentations:

  • CanChild Research Issue Presentation (“The F-words in Childhood Disability: Why is it so hard to do in the real world?”)
  • Ontario Association of Children’s Rehabilitation Services Conference (“A family-researcher partnership: Working together to spread awareness on the ‘F-words’ in childhood disability”)
  • CanChild 25 Years Celebration Event (“A family-researcher partnership: Working together to spread awareness on the ‘F-words’ in childhood disability”)
  • Ontario Association on Developmental Disabilities Research Special Interest Group Conference (“A family-researcher partnership: Behind the scenes of the ‘F-words’ in childhood disability integrated knowledge translation journey”)
  • Health and Wellbeing in Developmental Disabilities Conference (“The ‘F-words’ in Childhood Disability: Helping families, health care practitioners, policy makers, and researchers to think holistically and work together”)
  • Canadian Association of Paediatric Health Centres Conference (“A family-researcher partnership: Working together to spread awareness on the ‘F-words’ in childhood disability”)
  • 4th International Cerebral Palsy Conference (“The F-words in Childhood Disability: Why is it so hard to do in the real world?”)
  • American Academy for Cerebral Palsy and Developmental Medicine (“The F-words in childhood disability: A values statement for children, families and service providers.”)
  • Child, Youth, Family & Disability Conference (“The ‘F-words’ in Childhood Disability: I swear this is how we should think!”)
  • 19th European Congress of Physical and Rehabilitation Medicine, (“The F-words in childhood disability: A values statement for children, families and service providers.”)