Developmental Trajectories of Children with CP
The On Track Study is a large multi-site collaboration involving researchers, therapists, families, and children with cerebral palsy (CP) from across Canada and the United States. The aim of the CIHR funded study is to describe the changes in balance (a primary impairment), range of motion limitations, strength, and endurance (secondary impairments), number and impact of health conditions, and participation in self-care, recreation, and leisure activities over a one-year period in young children with CP aged 18 months through 11 years. We aim to recruit 175 children with CP, aged 18 months to 10 years, in each of the 5 levels of the Gross Motor Function Classification System (GMFCS) for a total sample of 875 families. The On Track Study will recruit some families involved in our previous Move & PLAY study, as well as welcoming some new children and their families to the project. Trained therapist assessors will measure the primary and secondary impairments (i.e. balance, range of motion limitations, and strength) on 2 occasions (12-months apart). Parents will complete questionnaires to track changes in the child's endurance, health conditions, and participation in self-care and recreation activities, at the same data collection points. We will use these 2 data collection points to develop reference percentiles and we will present the data so that therapists can assist families to determine if children with CP are developing as expected, better than expected, or more poorly than expected, depending on their functional ability levels.
Partnering with Families of Children with Cerebral Palsy
Checking Up and Checking In: Partnering with Families of Children with Cerebral Palsy
A video inspired by parent members of the On Track study team and funded by PCORI.