TRUST Study

TRansition US Together (TRUST): A Parent-Centered Educational Toolkit to Support Their Adolescents with Juvenile Idiopathic Arthritis (JIA) and childhood-onset Systemic Lupus Erythematosus (cSLE) as they Transition To Adult Care

 

Pages from parent transition to adult care road map

Transition to Adult Rheumatology Care - Parent/Caregiver Reference Guide is a pamphlet to describe the transition process to parents and help them understand their role in supporting their adolescents during this time.

Download the Guide

 

Transition to adult rheumatology care   youth

The goal of this road map is to help youth make the transition from pediatric to adult rheumatology care. This outlines things that are important to know before making the transition.

Download the Road Map

 

Research Team

Co-Principal Investigators

  • Dr. Michelle Batthish, McMaster Children's Hospital, Hamilton, batthim@mcmaster.ca
  • Dr. Jan Willem Gorter, McMaster Children's Hospital & CanChild Centre for Childhood Disability Research, Hamilton, gorter@mcmaster.ca

Co-Investigators

  • Dr. Karen Beattie, McMaster Children's Hospital, Hamilton, beattik@mcmaster.ca
  • Dr. Molly Dushnicky, McMaster Children's Hospital, Hamilton, molly.dushnicky@medportal.ca
  • Dayle McCauley, McMaster Children's Hospital & CanChild Centre for Childhood Disability Research, Hamilton, dmccaul@mcmaster.ca
  • Dr. Tania Cellucci, McMaster Children's Hospital, Hamilton, celluct@mcmaster.ca
  • Dr. Liane Heale, Co-Investigator, McMaster Children's Hospital, Hamilton, healel@mcmaster.ca
  • Habeba Talaat, McMaster University, Hamilton, talaath@mcmaster.ca
  • Steffy Thomas, Co-Investigator, McMaster University, Hamilton, thomas20@mcmaster.ca
  • Julie Herrington, Co-Investigator, Arthritis Society, Hamilton, JHerrington@arthritis.ca

 

Funding

Hahso logo

Funding agency: Hamilton Academic Health Sciences Organization (HAHSO) AFP Innovation Grant
Amount: 199,979.00
Year(s) Funded: 2021, 2022
Reference Number: HAH-20-22

 

How to cite this page?

1) Dushnicky, M.J., Beattie, K.A., & Batthish, M. (2021) Parent/Caregiver Reference Guide: Transition to Adult Rheumatology Care at McMaster Children's Hospital. date accessed. https://canchild.ca/en/research-in-practice/current-studies/trust-study

2) Dushnicky, M.J., Beattie, K.A., & Batthish, M. (2021) Youth Transition Road Map: Transition to Adult Rheumatology Care at McMaster Children's Hospital. date accessed. https://canchild.ca/en/research-in-practice/current-studies/trust-study