Youth Engagement in Research

The Youth Engagement in Research study aims to develop training materials with and for youth with neurodevelopmental disabilities to support their knowledge, skills, and confidence as research partners.

What do we mean by research partner?

Different from being a research participant (patient as data point), a research partner plays an equal and active role as part of the research team. They help guide the research process by setting priorities that are meaningful and relevant to patients and their community.

How can you help us out?

We hope to engage in Zoom conversations with youth (ages 18-25) with neurodevelopmental condition(s) about training needs as research partners. What are the current barriers and strengths? How can we improve the research partner experience for all youth with disabilities?

You may choose to participate in an online focus group (about 60 minutes) OR an individual interview (about 30-45 minutes). You are welcome to request accessibility accommodations (e.g., live captioning), use any augmentative and alternative communication devices, and can have a communication partner participate with you.

By participating, you will be provided with a $20 e-gift card as a token of our appreciation.

Please contact Samantha Dong ( if you are interested or have any questions.

Know a friend or family member who would be eligible to participate?

Please feel free to share this opportunity with them, and they are welcome to reach out to us if they have any questions or are interested in participating.

We would like to thank you in advance, as your perspectives will inform the development of future training materials!